Communication Tools

Hundreds of thousands of people living with metastatic breast cancer worldwide deserve the opportunity to understand their disease and treatment choices and face their diagnosis knowledgeably. ACCC’s partner organization, the Metastatic Breast Cancer Alliance, has pulled together tools from their networked members below. ACCC will be including updates on this initiative in the coming months. Take time to explore existing tools and learn more about what’s in the works.

Tools & Resources

Cancer Support Community: Metastatic Breast Cancer

Living Beyond Breast Cancer

Breast Cancer Helpline: (888) 753-LBBC

  • Patients can talk by phone with a trained volunteer who has been diagnosed with breast cancer. They can provide them with emotional support, share practical information and give comfort. All calls are completely confidential. Women and men diagnosed with breast cancer and their caregivers are invited and encouraged to use the Helpline. Hours: Monday – Friday from 9:00 AM to 9:00 PM. (ET). At all other times, leave a message and your call will be returned within 24 hours or and often much sooner.

Metastatic Trial Search

Metastatic Trial Search is a clinical trial matching service designed specifically for patients with metastatic breast cancer. Developed by BreastCancerTrials.org in collaboration with five breast cancer advocacy organizations. Providers can use Metastatic Trial Search to find trials for patients or refer patients to use it on their own.

Learn More about the Dandelion Project

The Metastatic Breast Cancer Alliance is currently working on The Dandelion Project – a first-of-its-kind approach to information for patients with metastatic breast cancer and their families by designing a set of unique visual tools that will help address the existing communications challenges, increase patient engagement, and facilitate alignment of patient and healthcare team goals. Led by patients’ and healthcare teams’ insights and harnessing design expertise, the project is currently in pilot test phase investigating visuals as the means to redesign the conversation around metastatic breast cancer.

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